18. Working with families and friends

When a person has dementia it has an effect on all members of the person’s family and friends. Working closely with a person’s relatives and friends is therefore vital. Sometimes this is described as a ‘relational approach’.

Ways to engage positively with a person’s relatives and friends might be to:

  • Provide knowledge and information about dementia
  • Actively listen to concerns expressed
  • Provide regular updates about any changes for the person
  • Encourage participation in care planning where possible
  • Involve families and friends in the development of a life story book and learn about the history and life of the person with dementia
  • Provide information about any support networks for relatives of people with dementia
  • Ensure people know about their rights relating to benefits , carers assessments, advocacy etc

Task: Download Chapter 7 ‘The needs of carers’ from The Nuffield Council on Bioethics (The Nuffield Council on Bioethics, 2009)

From reading this chapter write in your notebook the 4 most frequently reported problems associated with caring that carers of people with dementia, stroke and Parkinson’s disease report (see section 7.3).

Further learning resources «