End of life care

End of life quality markers for dementia
Authors: The National Council for Palliative Care, Dying Matters, Anchor, Alzheimer’s Society, Dementia UK, National Care Forum and St Christopher’s Hospice
Summary: This document focusses on dementia specific quality markers to support the implementation of the generic set in a manner that recognises issues arising from dementia. The document outlines seven headings for quality markers for end of life care aimed at commissioners and mapped these against areas of priority from a dementia perspective. There are several resources already available which impact on some of the priorities for dementia and end of life care. The document also includes sources of further information or support to help bring together many of these relevant documents.

End of Life Care Strategy: quality markers and measures for end of life care

End of Life Care Strategy: quality markers and measures for end of life care

End of Life Care Strategy: quality markers and measures for end of life care
Author: Department of Health
Summary: The End of Life Care Strategy: quality markers and measures for end of life care (DH, 2009) was published to support commissioners and providers in delivering improvements in care. As with the Strategy they accompany, the markers and measures are generic and apply to care across end of life care. The end of life care quality markers provide detailed structure and process markers and measures which will be relevant for end of life care for people with dementia.

End of Life Care for People with Dementia
Author: Marie Curie Cancer Care
Summary:This project aimed to identify the major barriers for dementia patients and their carers in accessing good quality end of life care. The research findings suggest cost effective ways of enabling improvements. You can download various project documentation from the Marie Curie Cancer Care website, including:

  • Project report (PDF 585KB)
  • Technical report (PDF 133KB)
  • Project toolkit (MS Word 429KB) giving details of the methodology and resources used by the study team is available on the website so that the data collection and analysis approach can be replicated in other locations if desired
  • Presentation (MS PowerPoint 4MB)

Clinical Knowledge Summary: Managing end-of-life problems
Author: Clinical Knowledge Summary service www.cks.nhs.uk
Summary: This summary covers the principles of palliative care, and reviews the management of some common problems in palliative care.