The following information shares the production process of the Dementia Awareness Resource Pack to support organisations to adopt and adapt the pack making it relevant for local use.

Resource pack contents

1. About the pack (South West Dementia Partnership)
2. 2 Resource Cards (Princess Royal Trust for Carers)
3. The Dementia Gateway (Social Care Institute for Excellence)
4. 10 Ways to look after your mental health (Mental Health Foundation)
5. Admiral Nursing Direct (Dementia UK)
6. Remember the person (Alzheimer’s Society factsheet)
7. Planning for your future care (National End of Life Care Programme)
8. Going into hospital (Age UK factsheet)
9. This is me (Alzheimer’s Society leaflet)
10. What is dementia? (Alzheimer’s Society factsheet)
11. Videos (DVD) & information sheet (Innovations in Dementia)
12. Library resources sheet (South West Dementia Partnership)
13. Useful helplines, organisations, websites (South West Dementia Partnership)

Folder design

The folder will hold A4 pages and A5 leaflets. It includes slits to insert a DVD and a business card. Download a Quark template file that is ready for print production. Please note the large filesize (16.6MB). Consider including your organisation logo on the front cover.

Folder print production

Cost: Unit cost £1.75 for 200
Character Graphics Design & Print
t: 01823 279008
f: 01823 279011
[email protected]
www.charactergraphics.co.uk

1. About the dementia awareness resource pack
This pack contains a selection of quality assured awareness raising resources designed to promote living well with dementia. The resources include leaflets, factsheets, contact lists and a DVD.

The pack is intended for hospital care staff for use with people coming into hospital who may have dementia or experience symptoms associated with dementia. The pack contains specific examples but also signposts people to the organisations themselves. Although the pack is designed for use in a hospital setting there is clearly scope for it to be further developed for use in other settings.

The pack has been produced to support the implementation of the South West Hospital Standards in Dementia Care, intended to transform hospital care for people with a dementia.
www.southwestdementiapartnership.org.uk/hospital-care/hospital-standards/

The implementation of the hospital standards intends to make a significant contribution to improving care and services in general and community hospitals. The provision of a resource pack will provide accessible information in the format that is suitable, appropriate and can be tailored for people living with dementia.

A recent survey illustrated the need for a core information pack which could be provided to people in all South West hospital settings. The survey findings revealed significant variation in the information about dementia provided to people in a hospital setting. We found that many hospitals were promoting the use of nationally recognised resources, such as the ‘This is me leaflet’ (Alzheimer’s Society, 2010). However some hospitals do not signpost people consistently to the most valued resources and remain unaware of the wealth of awareness resources which exist. We also identified excellent examples of local handbooks and signposting guides. A few of these are well known and have been adapted for use in other localities. However there remain a number of hidden gems which many could benefit from knowing more about.

There are some important messages from the desktop research and the lived experience of people living with dementia , their carers, families and friends:

• every person’s journey with dementia is unique
• people would like information tailored to their requirements at that time
• have the opportunity to be signposted and supported to information and resources
• sometimes people are often unaware of what is available to them and may need help and support to understand and access what is on offer, and
• a key point of contact can make a real difference.

Contents
1. About the pack  South West Dementia Partnership (2011) About the dementia awareness resource pack. Bridgwater, South West Dementia Partnership.
Introduction to the dementia awareness resource pack

2 Princess Royal Trust for Carers (2009) 2 Resource Cards. London, Princess Royal Trust for Carers.
A website offering specialist information for those who work in health & social care and want to support family or unpaid carers. Readers can search for their local centre.
Cost: free
Contact:
Tel: 0844 800 4361
Fax: 0844 800 4362
Email: [email protected]
Website: http://www.carers.org

3. Social Care Institute for Excellence (2010) The Dementia Gateway Postcard. London, Social Care Institute for Excellence (SCIE)  Post card about the SCIE Dementia Gateway which offers free access to a wide range of resources, focusing on key topics in dementia care, e-learning materials, and films.
Cost: free
Contact:
Tel: 0207 0896840
Fax: 020 7089 6841
E-Mail: [email protected]
Website: http://www.scie.org.uk/dementia

4. Mental Health Foundation (2010) 10 Ways to look after your mental health. London, Mental Health Foundation.
The Mental Health Foundation produces a range of publications, including reports, briefings and information booklets. Most of these can be downloaded free of charge from this site.
Cost: free
Contact:
Tel: 020 7803 1100
Fax: 020 7803 1111
Email: [email protected]
Website: http://www.mentalhealth.org.uk

5. Dementia UK (2011) Admiral Nursing Direct Booklet. London, Dementia UK.
Contact details for information and support for family carers, people with dementia and professionals. Provided by experience Admiral Nurses and available by telephone and email
Cost: free

Contact:
Tel: 020 7874 7200
Fax: 020 7874 7219
E-mail: [email protected]
website: http://www.dementiauk.org

6. Alzheimer’s Society (2011) Remember the person. London, Alzheimer’s Society.
The idea of Remember the person is encouraging people to be a friend to someone with dementia. It is trying to take the fear out of dementia and make people realise that people living with dementia are just people. It gives them ten simple things they can do to help a family living with dementia that will hopefully get people to support families living with dementia more.
http://www.alzheimers.org.uk/site/scripts/download.php?fileID=869
Cost: free
Contact:
Telephone 0207 4235134
Fax 020 7423 3501
Email: [email protected]
website: http://www.alzheimers.org.uk

7. National End of Life Care Programme (2009) Planning for your future care – A guide. London, National End of Life Care Programme NHS
This booklet provides a simple explanation about advanced care planning and the different options open to people.
http://www.endoflifecareforadults.nhs.uk/publications/planning-for-your-future-care-evaluation
Cost: free
Contact:
Tel: 0116 222 5103
Fax: 0116 222 5101
Email: [email protected]
Website: http://eolc.nhs.uk

8. Age UK (2010) Going into hospital. London, Age UK.
Age UK factsheet which provides information about going into hospital.
http://www.ageuk.org.uk/Documents/EN-GB/AgeUKIG07%20Going%20into%20hospital%20Guide.pdf
Cost: free
Contact:
Tel: 0800 169 65 65
Website: www.ageuk.org.uk/healthandwellbeing

9. Royal College of Nursing and Alzheimer’s Society (2010) This is me leaflet. London, Alzheimer’s Society.
This leaflet provides professionals with information about a person with dementia to help enhance the care and support they receive whilst in an unfamiliar environment. It is not a medical document.
http://www.alzheimers.org.uk/site/scripts/download.php?fileID=849
Cost: Single copy free. Pack of 25 £3.20
Contact:
Telephone 0207 4235134
Fax 020 7423 3501
Email: [email protected]
website: http://www.alzheimers.org.uk

10. Alzheimer’s Society (2010) What is dementia? London, Alzheimer’s Society.
This Alzheimer’s Society factsheet explains dementia.
http://www.alzheimers.org.uk/factsheet/400
Cost: six sheets free. More than six sheets 20 pence each
Contact:
Telephone 0207 4235134
Fax 020 7423 3501
Email: [email protected]
website: http://www.alzheimers.org.uk

11. Innovations in dementia (2011) Videos by people with dementia. Exeter, Innovations in dementia.
A series of films made by people who are living with dementia. The films show people living their lives positively, with vitality and creativity. They are about people who are still learning, and still growing. They show that dementia is life-changing, but not life-ending.
http://www.innovationsindementia.org.uk/videos.htm
Cost: £1.10 each (for 200 requested)
Contact:
Innovations in Dementia Community Interest Company (CIC)
Tel: 01392 420076
website: http://www.innovationsindementia.org.uk

12. South West Dementia Partnership (2011) Dementia awareness resources library sheet. Bridgwater, South West Dementia Partnership.
Information sheet that provides a sample of the resources from the dementia awareness resources library, developed by the South West Dementia Partnership. The resources are additional examples, which are frequently asked about or have been developed locally. You can access many more high quality resources at www.southwestdementiapartnership.org.uk/awareness-resources-library/

13. South West Dementia Partnership (2011) Dementia: useful organisations, telephone numbers and websites. Bridgwater, South West Dementia Partnership.
Information sheet that provides a summary of useful organisations, telephone numbers and websites to support people living well with dementia.

12. Dementia awareness resources library sheet
Below is a sample of the resources from the dementia awareness resources library developed by the South West Dementia Partnership. The resources are organised alphabetically by topics, which are frequently enquired about or have been developed locally. You can access many more high quality resources at www.southwestdementiapartnership.org.uk/awareness-resources-library/

Care homes
Age UK (2010) Care home checklist. London, Age UK
Age UK checklist you assist people with choosing a care home.
http://www.ageuk.org.uk/Documents/EN-GB/Information-guides/AgeUKIL5_care_home_checklist_inf.pdf

Caring for someone with dementia?
Wiltshire Council (2011) Caring for Someone with Dementia. Wiltshire, Wiltshire Council
Booklet providing advice and information for carers of people with dementia
/wp-content/uploads/caring_for_someone_with_dementia.pdf

Carers Support Service Cornwall Rural Community Council (2010) Carers Information Pack 2010 – 2011. Cornwall, Carers Support Service Cornwall Rural Community Council.
Booklet providing advice and information for carers of  people with dementia
http://www.cornwallrcc.org.uk/carers

Causes of dementia
Devon Partnership NHS Trust and Torbay Care Trust (2009) Areas of the Brain affected in Alzheimer’s Disease and Dementia.
This short film presented by Drs David Somerfield and Alison Carr gives an overview of the main regions of the brain important in dementia.
http://www.youtube.com/watch?v=hDtQLhv4s50

Children and Families
Mental Health Foundation (2010) The Milk is in the Oven. London, Mental Health Foundation.
Lots of people helped with the researching and writing of this booklet. Young people said what they thought about dementia and growing older (there are comments from them throughout the booklet).
http://www.interiorhealth.ca/uploadedFiles/Health_Services/Senior_and_Adult_Care/Dementia_Care/After_Diagnosis/milks_in_the_oven.pdf

End of life care
National End of Life Care Programme (2010) Care towards the End of Life for People with Dementia: A Resource Guide. London, National end of Life Care Programme.
This guide provides links to information sources, resources and good practice in end of life care (EoLC) for people with dementia.
http://www.endoflifecareforadults.nhs.uk/publications/care-towards-the-end-of-life-for-people-with-dementia

Living well
NHS Gloucestershire et al (2010) Gloucestershire Living Well handbook. Gloucestershire, NHS Gloucestershire et al.
The inspiration for this handbook came from the real life experiences of a person living with dementia and his carer who felt it was important to have one place to store essential information.
http://www.nhsglos.nhs.uk

Cornwall Council (2009) Services for people with dementia. Cornwall, Cornwall Council.
This booklet contains useful information about services available to people in the Cornwall area
/wp-content/uploads/services_for_people_with_dementia.pdf

Medication
Royal College of Psychiatrists (2009) Drug Treatment of Alzheimer’s disease. Lodnon, Royal College of Psychiatrists.
Factsheet on current medications available for dementias.
http://www.rcpsych.ac.uk/mentalhealthinfo/alzheimersanddementia/drugtreatmentofalzheimers.aspx

Seldom heard
Joseph Rowntree Foundation and University of Edinburgh (2010) Supporting Derek. London, Joseph Rowntree Foundation.
DVD and training manual on diagnosing and supporting someone with learning difficulties and dementia.
http://www.jrf.org.uk/publications/supporting-derek

Social Care Institute for Excellence (2011) Black and minority ethnic people with dementia and their access to support and services. Research briefing 35. London, Social Care Institute for Excellence.
This briefing discusses the ways in which services can become better at responding to the needs of Black and minority ethnic people in their locality.
http://www.scie.org.uk/publications/briefings/files/briefing35.pdf

13. Useful organisations, telephone numbers and websites

Age UK
Age UK is the new force combining Age Concern and Help the Aged. Age UK provides advice and information  for people in later life through the Age UK Advice line‚ publications and online.
Age UK Advice: 0800 169 65 65
www.ageuk.org.uk

Alzheimer’s Society
Provides information about all types of dementia and supports people, their families and carers including a range of factsheets.
Dementia Helpline 0845 3000 336
www.alzheimers.org.uk/factsheets

Assist UK
The national voice for disabled/independent living centres with information about Disabled Living Centres throughout the UK.
Tel: 0870 770 2866
www.assist-uk.org

Carers UK
Information and support for carers including information about benefits.
Tel: 0808 808 7777
Email: [email protected]
www.carersuk.org

Care Quality Commission (CQC)
CQC is the health and social regulator in England. Contact it to find a local social care or health provider and for advice on choosing the right provider for you.
Tel: 03000 61 61 61
Email: [email protected]
www.cqc.org.uk

Citizens Advice Bureaux (CAB)
National network of free advice centres offering free, confidential and independent advice, face to face or by telephone.
Tel: 020 7833 2181
www.citizensadvice.org.uk

Counsel and Care
Provides advice and information for older people, their friends and families.
Tel: 0845 300 7585
Email: [email protected]
www.counselandcare.org.uk

Dementia UK
Dementia UK is a national charity, committed to improving quality of life for all people affected by dementia.
Admiral Nurses Helpline Dementia UK Tel: 020 7874 7200
E-mail: [email protected]

Disabled Living Foundation
Runs an equipment demonstration centre and provides information about equipment for daily living.
Tel: 0845 130 9177
Textphone: 020 7432 8009
Email: [email protected]
www.dlf.org.uk

Disability and Carers benefits (Direct.gov)
The Benefit Enquiry Line is a telephone advice and information service. You can call if you are sick or disabled or if you are caring for someone and acting on their behalf.
Telephone: 0800 88 22 00
http://www.direct.gov.uk/en/DisabledPeople/FinancialSupport/Introductiontofinancialsupport/DG_065148

Elderly Accommodation Counsel
Maintains a nationwide database of housing for older people to help them to choose suitable accommodation.
Tel: 0800 377 70 70
Email: [email protected]
www.housingcare.org

Foundations
National co-ordinating body for home improvement agencies (HIAs), which offer independent advice, information, support and practical assistance to older owner occupiers, among others, to repair and adapt their homes.
Tel: 01457 891909
www.foundations.uk.com

MIND – For better Mental Health
Are able to provide information on a range of topics including dementia where to get help, drug and alternative treatments and advocacy. Able to provide details of help and support for people in their own area.
Tel: 0300 123 3393
Email: [email protected]

National Centre for Independent Living
Provides information on living independently.
Tel: 020 7587 1663
Advice line: 0845 026 4748
www.ncil.org.uk

NHS Choices
An online information service in England that gives information about health care and helps users decide
on what choices they should make. Find everything you need to know about dementia including causes, symptoms, diagnosis and treatment, with links to other useful resources.
www.nhs.uk

NHS Direct
Gives information about local health services in your area and provides health advice in England.
Tel: 0845 4647
www.nhsdirect.nhs.uk

Pictures to share www.picturestoshare.co.uk – books and resources for people living with dementia

Princess Royal Trust For Carers
There are local Carers’ Centres that deliver a wide range of local support services. Website can direct you to a local centre.
Tel:  0844 800 4361
www.carers.org

UK Home Care Association
Provides information about choosing care and contains an online database to help you choose a home care agency.
Tel: 020 8288 5291
www.ukhca.co.uk