3. Community support


Build capacity and support in the community

Questions to consider

  • what do people with dementia, and their carers/families need, to live well?
  • how can the needs of people living with dementia be better understood, and ‘mainstreamed’?
  • what are the commissioning opportunities?
  • what is the role of the GP and primary health care team?

DRIVER: Local strategic leadership

Actions Resources Examples
Engage with local authority public health, and Health and Wellbeing Boards to review prevalence of dementia and trajectories for increase. Consider implications of this changing profile, over time. Undertake a needs assessment for the current and future population with dementia.

Ensure that the needs of vulnerable older adults are reflected in local planning strategies (supported housing; transport; health; social care, residential and nursing care; carers’ strategies; carers’ services).

Promote dementia friendly communities to tackle stigma, raise awareness, and promote opportunities for people living with dementia to live well.

DRIVER: Appropriate treatment, care and support post-diagnosis

Actions Resources Examples
With stakeholders, review local strategies and care pathway(s) to identify range of support required at different stages and steps, and inform local strategies. For example,

  • targeted screening for dementia
  • information and guidance
  • GP/Primary Care liaison and support
  • education and training for carers
  • flexible respite
  • support and care at home, including night sitting
  • case management/key working
  • advocacy
  • telephone contact 24/7
  • specialist advice and interventions
  • dementia care in hospital (acute and community hospitals)
  • workforce development

DRIVER: Recognition and support in primary care

Actions Resources Examples
Ensure effective training is in place for GPs and primary health care teams to ensure they have the competences required to recognise memory problems; undertake a basic dementia screen; make a diagnosis of dementia (moderate-severe stage); and refer to specialist memory assessment services where indicated.
  • Dementia diagnosis and management: a narrative review of changing practice

    Through the EVIDEM project, Professor Steve Iliffe and colleagues, reviewed studies of interventions to improve GPs performance in the early detection and management of dementia. Interventions proved more successful when tailored to the learning needs of the GPs and developed with them. Read more »

  • Devon dementia diagnosis action plan

    This action plan outlines work underway to achieve improved, responsive and quality services for people with dementia and their carers across Devon. Key areas include: a GP clinical lead for dementia; a localised Map of Medicine; a memory assessment pathway; a GP education programme. Read more »

  • Gloucestershire dementia strategy

    The Gloucestershire dementia strategy recognises the pivotal role of primary care staff, and GPs in particular, in diagnosing dementia and in subsequently co-ordinating care across a range of services. Read more »

  • GP dementia fellowship posts

    Severn Deanery has recruited five GP Dementia Fellows to work with local practices to develop understanding about, treatment and care for people living with dementia. Read more »

  • Somerset dementia strategy

    Somerset dementia strategy provides a framework to implement improved, responsive and quality services for people with dementia and their carers across Somerset. The accompanying action plan outlines work underway to achieve the strategy objectives. Read more »

  • Specialty Training Registrar (STR4) GP trainee

    NHS Cornwall and Isles of Scilly, with SW Peninsula Deanery have funded one Specialty Training Registrar (STR4) GP trainee to work with local general practices to develop understanding about, treatment and care for people living with dementia. Read more »

Engage with deaneries to promote access to training and education for pre- and post-registration medical staff, including GPs.
Ensure each General Practice has a named clinical lead, or champion for dementia.
Promote and facilitate networking between dementia clinical leads / champions.
Work with primary care commissioners to ensure that standards of care and support are in place in primary care for people who have a diagnosis of dementia, and their carers/families – both for those living at home, or in care homes.
Work with general practices to ensure that the case management role of the general practitioner is recognised and effective.
Facilitate the identification of learning and development needs within general practice, and support local improvement plans.
Promote awareness and understanding of the role of health and social care, the voluntary and community sector, and the independent sector in supporting people living with dementia in the community, and in care homes.

DRIVER: Carers support

Actions Resources Examples
Ensure carers have timely access to carers’ assessments, flexible respite, carer’s breaks, education, single point of contact 24/7.
Ensure carers are signposted to social care to access Carers’ Assessments (Carers Recognition and Support Act, date)
Capture feedback and outcomes from carers of people living with dementia, in order to establish quality of experience and standards of care. Use this information to inform local service improvement and (re) design.
Ensure carers receive regular health checks, and engage with health promotion opportunities.

DRIVER: A skilled, compassionate workforce

Actions Resources Examples
Consider range of relevant service contracts, and build in to contracts standards for staff competence in working with people living with dementia

DRIVER: Timely, accessible information

Actions Resources Examples
Ensure patients and carers/families have access to a range of information about memory problems, and dementia. Build this requirement into contracts, making use of a range of media and ensuring that that information meets people’s changing needs.

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